Lipedema Advocacy in the UK with Sharie Fetzer
Title: Lipedema Advocacy in the UK
Intro: (note: the European spelling is lipoedema and used interchangeably in this transcript) My personal story is I’m now sixty two. I’ve had lipedema since I was fifteen. I have two daughters, three grandsons, and one granddaughter. My granddaughter’s the reason I’m standing up here talking to you. She’s two and a half and I don’t want her finding out she’s got lipedema when she’s fifteen and there’s no hope, no treatment, nothing. So I want to bang some drums and I don’t want it to pass down the generations of my family.
It’s not whether you get knocked down, it’s whether you get up.