The Importance of Being Informed about Lipedema with Tilly Smidt

Tilly Smidt became an advocate for lipedema after receiving her own diagnosis. She started to help other women understand about lipedema in 2004. She shares her own experiences with weight bias, and its impact not only on her own self-esteem, but also on the quality of healthcare she and other women with lipedema receive. Tilly hopes that by raising awareness, her work will educate doctors and improve the lives of other women living with lipedema. Tilly Smidt is founder and director of an independent national lipedema association for lipedema patients in the Netherlands. Tilly and her husband Huub started her website,, in 2004 in order to reach out and help other women understand about lipedema. She has Stage 4 lipolymphedema.

It’s not whether you get knocked down, it’s whether you get up.
Vince Lombardi